Tuesday, May 16, 2006

Happy Tourette Syndrome Month!

May 15 - June 15 is National Tourette Syndrome Awareness Month (I know, I know - weird that it starts in the middle of a month - but that's a lot like tics - that don't always happen at the most convenient time!).

My daughter, Twitchy Girl, wanted to say hello to all of my blogging friends! She is eight, and she has Tourette Syndrome. When she found out that this was the month to raise awareness about TS, she hopped in front of the camera phone and wanted to spread the word. She's officially out-of-the-closet with her disorder!

We wanted to encourage everyone to take a moment and learn a little bit more about TS. It is very different from what television has portrayed over the years. I've also discovered that I have had mild TS throughout my life. I'm finally "out," as well. I have the constant sniffing that the whole world notices, but I've been hiding a grunt my entire adult life. I still hide it under loud noises, but I'm not ashamed of it anymore. It's a tic. Tics happen. :)

I've talked about it before, but Twitchy Girl wanted to finally put a face to it. She is so smart, so beautiful, so creative ... oh, and she also has Tourette Syndrome!

So, blog about TS sometime in the next 30 days.

Tourette Syndrome Association
Tourette Syndrome Plus
Kids Health: TS


Amy T. S. said...

I have a friend whose daughter has TS. It really is so different from how TV and movies portray. TV stinks (this coming from a girl who has been watching ALL DAY today).

Check out your beautiful daughters on this page!

Anonymous said...

May I commend you for helping your daughter not only raise awareness but find peace and celebration in what others deem a "big and scary thing." Such a wonderful thing you are doing for her self-esteem.

Happy Month to you as well! :)

TulipGirl said...

Soooo. . . What sort of impact does TS have on your family? Not wanting to violate your daughter's boundaries and not asking for too much personal info. . . Just wondering what TS "looks like" in a normal family?

Anonymous said...

Tourettes is so often portrayed as uncontrollable cursing that most people don't know what to watch for in children. Our youngest daughter has an eye tic that we're keeping an eye on. Thanks for the info, I'll be doing some more TS research for sure!

Anonymous said...

My own son has a lot of noises related to autism. It's hard to explain sometimes because he "looks" so normal. Education is the key.