Thursday, December 03, 2009

There is no pill for RAD

Mar is at a big crossroads. I realize I haven't talked much about the RAD residual (look at me, coming up with new catch phrases). The reason being she has made some amazing strides, and I wanted to wait for her to have a bad day before I said anything.

Twelve days in a row without restriction. Two of those were normal school days. I honestly cannot remember the last time she has done two full normal days of school without sabotage.

Of course, today when she finally just kept doing things wrong deliberately, she became very upset when I asked her to head to her room. Later, after school and after she was more regulated, I looked at her with surprise and said, "Darlin' you have this all backward. You are UPSET! Don't you realize what you just did? You went twelve days being a family girl. You spend two STRAIGHT days honoring me as your mother and teacher. For heaven's sake, you NEED a break. Let your sweet heart and head rest. And celebrate!!"

Let me rewind. First *insert long, boring disclaimer here about me not being a doctor and how you should always check with your therapist or doctor before doing anything some crazy lady talks about on the internet, no matter what HER doctor says* we have started Mar on Niacin (vitamin B-3). We have considered it before, but I really felt like we should wait longer, until we had worked through a few more layers. Ya-da-ya-da-ya-da ... for her, at this point in her healing, it has been very helpful.

Very.

I have seen a marked improvement. It is hard to explain, but it seems to be helping just enough with her emotions (depression/anxiety) to help her ACCEPT our help.

Not a magical pill, by any means, but she obviously was deficient and needed the supplement. I always knew it was a possibility, but again - so many layers to my child's existence. We needed to do plenty of filtering first, and then see if it was still a need.

So, my daughter is trying. She is really, really trying. Yet, it is so very hard for her to give it all up. It is so very hard for me to watch her cry real, very soft tears over how scary it is ... and how badly she wants to do it. Today I made her repeat (yell) after me, "THIS IS NOT FAIR! I DID NOT MAKE ME THIS WAY! WHY DO I HAVE TO DO ALL THE WORK TO GET BETTER? WHY MEEEEEE????"

I knew yesterday that her streak was over. She woke up sweating. The excessive farting started (haven't had that in at least six months), some inappropriate talk was hinted at and she cracked her knuckles. That used to be one of her big things in the very beginning. It was a way for her to bug people. It has been approximately a YEAR since the knuckle thing went away. I could see it - she just couldn't STOP with the controlling things, and was bringing in old stuff to fill the void.

It's her addiction. So, tonight we talked about some ways to break up restriction into smaller doses, to increase her chances at succeeding. We also came up with a really fun way to let her have some CRAZY, more grown-up control if she makes it a whole day without an hour on restriction. She will actually have an evening with no bedtime. She will be in her room, and will have total control on when/if the lights go out and when/if she goes to sleep.

Now, I know that she will receive a melatonin on those evenings to help settle her from all the grown-up excitement, and will eventually konk out. I know she will stay up later than normal and be cranky the next day. I know I will pay for it in some way. But WOW - that was the first time in 48 hours that her body and face finally softened. She does feel completely stripped of any sort of power and control in her life. To know that we recognize that, and are willing to meet her halfway and reward her pushing through the fear ... needless to say, she liked the idea.

Flip over to Rocky, who is currently sleeping in the laundry room. Bless his heart - just can't seem to keep that pee where it belongs. He has so much anger from the abuse he experienced. So, we're working through that and trying to give him more tools to succeed. It's strange having them both really trying hard to move forward. That's a definite first. One of them has always been attempting to sabotage the other. They are both actively trying, AND Mar is actually giving it a bit more effort lately.

Do you see them? The pigs flying? Aren't they cute?

We all watched Biggest Loser together this week, and at one point Jillian yelled, "FEEL THE FEAR AND DO IT ANYWAY!" Rocky and Mar both looked right at me. We exchanged smiles.

So, it's all really good news, but I am oh so exhausted. This has taken hours and hours and hours of helping them walk through all of this. I'm glad I got my day off last Sunday, because I have been blowing and going emotionally ever since. Any of you who have had a child in therapy know exactly what I'm talking about. Therapeutic talks and activities and interactions are vital, but they suck the energy right out of you. Amazing how something so physically inactive can cause you to feel as though you've finished a triatholon.

Remember, the only thing harder than parenting our kids is actually being our kids.



(photo by Rodolfo Clix)

11 comments:

Brenda said...

Well said. What gets really tricky is when there are other mental disorders tossed into the mix with RAD. I do think healing the RAD is important in seeing the other illnesses clearl. Otherwise a diagnosis of bipolar or aspergers will be likely coming your child's way (if the therapist is not trained in attachment) I think my kids hve been diagnosed with a half dozen differnt things over the years, most of which are not true.

Shan said...

Awesome stuff Christine! Love the way you are motoring through and keeping your doogies about you in the process. :D Thanks for the info.

Lisa said...

Over the moon for Mar! 12 whole days!!!!

Thanks for the reminder on niacin. Gotta get it.

The last line....totally sums it up.

Diana said...

Ditto what Lisa said. I'm going to be looking into the Niacin thing as well. The only thing worse than the exhaustion of those vital talks and theraputic acitivities is having some clueless person (especially when they know you and your kids really well) say something really stupid like "relax. This is all normal kid stuff. You used to do exactly the same thing when you were little." And then watch me pull my hair out right then and there!

Oh yah, that last line totall sums it up!

Azul said...

I don't have a RAD-ish, but my son's autistic, and there's a lot of theraputic parenting in our house too.

I love your last line. I think we need that on a shirt, too.

Happymom4 aka Hope Anne said...

ITA about supplements being helpful. One BIG thing with our Dd was "Go Ruby Go". She has done SOOOO much better since we started her on it--and we can always tell if she starts getting careless about taking it . . . her behavior detoriates quickly--AND she ALWAYS breaks out in impetigo on her face. (Dx'd by a total of 5 different Doctors at 5 different times as impetigo . . . but she is the only one in the family who gets it . . . and she only gets it when she's either taking multi-vits (I Know--don't ask me why, cause I don't know!) OR if she stops taking "Go Ruby Go" and her immune system runs down.

Hannah_Rae said...

Lots of traumaverseries and healing going on here too...OY! :)

I'm proud of you, Mamacita!

Blessings!

Hannah

Jodi said...

thanks for the input. We have 2 children with rad. I could sure use input about your restriction plan for our 12 year old. If you are willing to share email is jodifhg@merr.com. thanks again!!
Jodi

Jessi Hacker said...

I love the thing you wrote at the end about the only thing harder than parenting our kids is being our kids. Gosh I completely understand that!!!! We are celebrating 9 whole days with my little one not peeing anywhere weird. Of course, celebrating silently...our latest attempt to handle it is to completely not handle it. To completely ignore it good and bad and have the same routine either way...get up, give me your blankets to be washed, go take a bath...I have been amazed at how much stress it has taken off me just now bothering with it. And not being able to upset mom, or use pee to control anything has for now anyway, eliminated it from her repertoire!

Ursula said...

Thank you.

Owlhaven said...

Funny thing-- I keep clicking over via blogher featured-post links. I identify so strongly with your various posts, but haven't been able to make myself subscribe. Why? Because the challenging bits of your life are so much like the challenging bits of mine that I don't know if I can bear to put energy/time into thinking about it. Maybe that sounds crazy, but somehow I am guessing you will understand....

Anyway, thanks for writing. I will keep popping in....

Mary, mom to 10, including 6 adopted.






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